Showing posts with label healthcare. Show all posts
Showing posts with label healthcare. Show all posts

Tuesday, 22 May 2018

The Bloody Truth

Hello again. Three weeks or so since I blogged last. Reasons for that are many and silly, but mostly bound up in a) weight gain, and b) arsery. Arsery which has seen me notsomuch fall off the wagon as leap off and burn the fucker to the ground.

Here's the thing though - that ends right now.

First thing's first, it's Tuesday. Ermmmm, last I recorded, I think I'd gone back up to 19 stone dead, or 266 pounds, which was irritating.

Following week I went up to 19 stone 1 pound.

Week after that, up again to 19 stone 2.25.
Clearly, there's drift going on, but given that I've done bog-all exercise and have been slugging and slothing my way through life for the past three weeks, it was going up alllllmost as slowly as it was previously coming off. But not quite, obviously.

Today, weighed in at 19 stone 2.25. Static from last week. Right now, I'll take that.

Now. Have been, as anyone who reads this will possibly remember, getting set up with the doctors in this area. Did the usual HBA1C blood test for long term blood sugars a few weeks ago. No sooner had I done it than they sent me a letter to say 'Balls. Need you to come and do that again.'

The image of course went through my mind of the diagnostic machinery going into overdrive, lights flashing, warning messages flashing, and then the whole kit and caboodle exploding in a puff of smoke when trying to process my blood. So I went and had it done again. Alllmost immediately the letter came back to say 'Yyyyeah, we can't afford to lose another machine. You need to get your ass in to see us, cos this shit ain't clever.'

Went today.

To explain the HBA1C, they like you to have a reading of under 50. I've previously managed under 50, but over the last few years, I've had a tendency, as the weight's crept back onto my bones, to hover in the low to mid-50s. Turns out last October, when we moved here, I had quite a bad result of 76.

Latest scoors on the doors? 117. One hundred. And then another 17. So, over twice what it should be.

#BadTony.

Badder Tony than the slow-ass drift of a pound a week here and there ever lets you know.

The nurse gave me a simple finger-pricking blood sugar test today. Again, in the UK, you're looking for numbers between about 6-8. Yyyyeah - 22.8. So - roughly three times what it should be.

'How are you not walking around with a huge dose of thrush?' she asked.
'Erm...should I be?'
'I'm surprised you're not, yeah,' she said, a touch too breezily for my liking.
'Oh, well, I won't panic when that happens then,' I muttered.
'I'm surprised your skin's not dreaful too,' she added.
'Oh it is, it's more or less turning to ash in the sun.'
'Aha!'
'We're happy about that, are we?'
'Visible symptoms,' she explained. 'Thing is, while your blood sugar's shot through the roof, your body's adapted to it quite well by the looks of things.'
'Thank you,' I said.
'But what we can't see is the untold damage it's doing to your systems inside,' she added.
'Oh.'
'First thing I'd be worried about is your heart.'
'Oh. I've already got an atrial fibrilation...thing going on,' I told her.
'I see that,' she agreed - I like to think she saw it in the notes on the screen in front of her, rather than being possessed of some weird and wonderful NHS juju that could let her spot fibrilation cases by eye.
'There are extra pills I can give you - we've got lots more stuff than we had even just five years ago,' she enthused. 'Weightloss injections and suchlike. The one I'd like to really get you on is for people with good kidneys. You have excellent kidneys.'
'I know,' I smarmed - back a decade or so ago, my mother, who at the time was more of a Tory, had shelled out to get me a BUPA head-to-toe check. They told me I had platinum-level kidneys. It's absurd, but it turns out my kidneys may be my best feature.
'The pill would let you use them to maximum efficience, so you'd pass the sugar out that way. Lose you about 300 calories a day. Also, your current pills aren't really touching the sides just now.'
I came clean that I'd been taking them with screaming irregularity pretty much since we got here - at first because there was a delay in registering and a month when I wouldn't have been able to get any prescriptions from them, and subsequently because I'd just gotten into bad pill-forgetting habits.
'Hmm,' she considered.  'Alright. Take your blood sugar measurements every morning. Some evenings too if you like, but essentially mornings. We'll see what you're like then. Oh and take the pills as prescribed, eh?'
'Will do,' I promised.

So, the stupid shit stops here and now. She gave me a testing machine to take away with me, so now I intend to bore you on a slightly more regular basis with measurements of blood sugar. Just because I can. More water, more walking, the bike is uncovered and just waiting for me. Less carb, less batter, less altogether stupid shit. The plan is to live here at the seaside. That means LIVING here at the seaside, and that in turn means doing what's necessary to stay alive as long as I can here at the seaside. So. Stupid macho posturing face on, and let's do this thing.

Tuesday, 17 April 2018

The Apparent Inconsequence of Inaction

'Don't take this as a mark of what you can get away with!'

'Yeah, yeah, I know. I won't, honest...' I lied. Well, it wasn't an intentional lie, just more of an understanding of the way in which my brain could be said to 'work.' Which is frankly, along absurd lines of hypocrisy and self-justification, with a touch of tedious public self-flagellation (which of course is where you come in).

This week, after having flopped over the first real  border line in the downward push, two things happened.

Firstly, a picture from a pal of mine of me as I was six years ago this week was re-shared on Facebook. Six years ago was when I was at my lightest in recent memory. I have kinda skinny stick-arms in the pic, but the rest of me looks as good as I remember looking in a long while. Oddly enough, the pic was taken round these parts, on a birthday celebration break for another pal of mine.

Apropos of nothing much, d also found a pic from EIGHT years ago of me on my beach, and bugger me but I was a miserable cur that day - probably faiiirly close to my heaviest in living memory.

So those were some interesting kicks in the head.

But the other thing that really happened this week was that I slipped matter-of-factly off the wagon. I didn't mean to do that either, the edge of self-control just kept lapping around my ankles. It wasn't even that leaping off into an oblivion of indulgence looked particularly pleasurable. I have a feeling it was just that thing self-harmers talk about - agency. Choice is choice, even if it's a bad choice, even - in fact, especially - if you know it's a bad choice, and you make it in spite of everything because it's yours.

Which is a long-ass double-dark way of explaining why I had ice cream this week. And doughnuts. And chips, and relatively little walking.

The thing is, for a guy who spills more words out of his fingers into cyberspace than would seem entirely feasible, I am pigging dreadful at talking about things.

Absolutely pigging dreadful. 'Only child' thing, possibly, but by the time I have to talk about things, I've already had the conversation a gazillion times on the inside of my head, and I tend to choose a fairly peppy way of bringing it into the world, because I've lived with it, picked it clean, put it back together a thousand ways, while whoever it is I talk to  comes to the subject new, and usually kind of 'Ohhhhkay, what the hell is this and where is it coming from?'

This, incidentally, is why, more often than not, d can look sideways at me and say 'Oh god...you're Thinking again, aren't you? I can hear it from here.'

She's dead right, of course. Most of the time, the subject dies, kicked to death by my Thinking, and never comes to light. This is also why, for instance, d long ago agreed to let me sleep with my iPod attached. My undistracted brain, given eight hours of silence to contend with, is a potential bedlam of Thinking, every angle of every line, every thought, every action, intonation, meaning...it's crowded as hell in there and it drives the 'conscious' me to utter sleepless distraction.

So...what? I hear you ask.

Well, so nothing, really, just the way of things in my head. And...well, there is a Thing. Hell, as ever with me, there are at least a handful of Things, but there's a particular Thing this week, in that I'm trying to drag something out of my brain for a writing submission, which has to be based in truth, and tell the story of some kind of healing from emotional trauma.

I'm not...good...with trauma. I'm never sure I have any right to talk about it, because let's face it, almost everyone has had more trauma in their life than me. Plenty of people have undergone trauma specifically to ensure that I don't have to. I've also undoubtedly been the cause of trauma to others, and probably still am.

But there was a Thing, back in ye olden days, that well and truly fucked me up for at least a couple of decades, and which to be honest is probably still fucking me up to some much lesser degree even now, despite a degree of healing. And I'm not sure exactly how much of the 'trauma,' such as it is, was inflicted from outside, and how much was a result of my Thinking. Probably by far the largest part was Thinking-based - but of course I still haven't worked out how to silence the Thinking, only to drown it out. And I've been trying to write about the Thing this week. Which, and here I'm guessing, might have had something to do with the drive to agency, and the slippage into ice cream, and doughnuts, and chips, and relatively little walking.

There have also been relatively few medications, as I've been holding on to finally get sorted and set up with a doctor and a pharmacist.

There was ice cream even yesterday, before I forced myself to have a somewhat longer walk than has become usual. Yesterday also marked the final slotting into place of a doctor, a prescription and a pharmacist, so all is happy and bouncy and groovy on that score, finally.

But with one thing and another, I had zero expectation of progress this week - I expected to be up at least four or five pounds, in fact, as a result of the Thinking-based slide into food-based idiocy.

18 stone 13.25.

That's the verdict of the Nazi Scales this morning. Down another half-pound in this endless crawl to progress. In spite of the Thing and the Thinking and the food and the lack of walking and the sparse medication...down a half-pound.

I officially now have no freakin' idea what's going on. Hmm...something else to Think about...

Sunday, 26 February 2017

The Catchup Confusion and the GBL List

What ho, chaps and chapesses, as Bertie Wooster would probably say, were he a) not fictional and b) here today. And indeed, what ho to all my non-binary Mx's too, because why the devil not, eh?

Apologies - missed quite a few days of entries, including, least forgiveably, a weigh-in day. Irritatingly, the Nazi Scales on weigh-in day were, sahll we say, fairly non-binary themselves, inasmuch as whenever I stepped on them, they refused to settle on the same figure twice. I woke up and they told me I was 18st 3.5. Hung aorund a bit, went for a fairly considered pee, and they put me UP to 18st 4.75. A few hours later, having still neither consumed anything nor notably expelled any more, they had me down as 18st 3.

So, really, who knows? I'm going to go with the first number they thought of, and say that irritatingly, I was still 18st 3.5 on Tuesday.

Since then, they've been doing some fairly similar things, varying by up to two pounds depending on, for instance, which foot goes on them first. We may be due a battery change, but certainly the news is not what I'd call conspicuously good. It's been one of those 'chained to the desk' weeks, though I have been pretty good in terms of going, like an automaton, for my 10,000 step walk every night, come rain, wind, sleet, snow and frankly just having a laugh. Still haven't plugged either the exercise bike or the treadmill in, which can't possibly go on much longer. What needs to happen is another big push, another system shock - a couple of days of double-walking, maybe, just to wake up a system that's now expecting 10,000 steps a day. Hmm. Will try and restructure a couple of days this week.

Pal of mine had a talk with a bariatric specialist today, and aparently had the whole 'Welll, you could be dead in ten years' talk. Believe me when I tell you, that'll put some rocket fuel in your Disappearing ass. It was being almost begged to have the procedure because otherwise I could be dead in ten that made me first decide to try to Disappear. That was something mad like six years ago now. Tick tock, tick tock, tick tock. Four years away from notional deadline, where the hell am I? I'm trying to do it again the non-surgical way, and I'm only really a couple of stones lighter than Zoiksy McLifeThreatening was, six years ago. Still, whichever way you go, this fight for health and social normalcy is a bastard, so at the risk of dissolving into crappy quotes, you've either got to get busy living or get busy dying.

Of course, being able to feel like you're living helps. I'm struck by the urge to whinge and moan about how actually little I've accomplished, and whenever that urge comes on me, my Inner Working Class Bastard slaps me silly. I have an urge to whinge about how I'm not a published novelist yet, which would feel like getting busy living, and my Inner Working Class Bastard gets up in my face to say 'Best fucking write then, hadn't ya?' - I have a novel that I think needs a tweak to its ending and maybe one more go-through, but instead of doing any of that and sending it out, I'm editing like a mad bastard. I have two separate people who've given me writing gigs on Who audio plays, and instead of doing either of them, I'm...editing like a bastard. Have a feeling soon there will be a chart in my life - a GBL chart, which, rather than seeing all these things I want to do as part of my ordinary To-Do List, and so, sort of turning them into chores to be done, will turn them into temporal rewards: edited like a mad bastard for a whole project? Right - send off the novel to five agents. No really, fuck you, this is what this time is to be used for. Ring the bell when it's done and go back to edit another project.

In terms of Disappearing, it's the well-known idea of effort and reward. Get under 18stone - take a day to write for yourself. Get to 17st 7, take the day to rearrange the bejesus out of your website. And so on.

Yes - I like this plan. A GBL List, to get more stuff actually DONE, in more areas of life, and feel more alive. Feeling more alive=a bigger incentive to put the work in to do more Disappearing, and so on.

Now excuse me, have to just go and edit like a bastard before taking my 10,000 step walk in the frozen pissing rain.

Thursday, 26 January 2017

The 500 Mile Challenge

'You should do that.'

As a sentence, it's the kind of thing from which great endeavours of cataclysmic foolishness are built.

This time, the line was delivered to me on Facebook, by a pal named Denise.
And she was talking about a song.

I'm fairly sure you all know the song, but maybe you're young or have been living in a particularly impenetrable cave, so here you go. If you don't know the song, it's called 'I would Walk (500 Miles)' and it's sung by gloriously Caledonian tune-lovers, The Proclaimers. Very catchy songwriters, The Proclaimers, and 500 Miles is one of a handful for which they're known outside their hardcore fan-base. It's a song that extends round the world, for both its joyous marchability, and its seeming note of lyrical, personal dedication. Good song. Great song.

Ahem...Here's a geeky-visualed version of the song. Hey, whaddaya want from me, I'm a geek, alright?




The reason the song suddenly appeared back in my life yesterday is simple to explain. Having started doing two walks a day in order to reduce my ridiculous and unsustainable girth, I ended up walking the equivalent of 8.9 miles yesterday.  Not by any means miraculous,

'And I would walk 500 miles, and I would walk 500 more...' quipped Denise, before adding the fatal words. 'You should do that.'

You don't TELL me things like that. You really just don't. Those are seeding words. Those are words that sprout.

It took but the work of moments and a trusty calculator to work out that 500 miles, at 8.9 miles a day, worked out to be 56 days of walking. Say 60 days to deal with what should probably be known as the radical bloody-minded inclemency of British weather, the occasional bursts of life-having and suchlike.

60 days is two months.

Which is where the beginnings of a ridiculous plan started to form.

As a sub-challenge of The Disappearing Man, why not actually try to do that? Walk 500 miles. All the figures seemed to claim it should be doable, if not by any means easy. Lose weight, but give it some sort of definition, some challenge, some scope...

And then I started to ponder. If you're going to do something like that, if you're going to actually walk 500 miles - which is the equivalent of 25 marathons, by the way, in terms of pure distance - it would surely be a crying shame for it to go to...waste, so to speak. Why not do it for something? A sponsored walk of Proclaimers' proportions.

But who to do it for. There are plenty of deserving causes in the world. My first thought was Diabetes UK, given that a) I'm a UK diabetic, and b) the Disappearing Man weightloss effort was first inspired by the real, paralysing fear of the potential consequences of that disease.

And then it hit me. An organization that does astounding, much-needed work, but which is under actual threat. An organization that supports work I believe in, and which typifies the freedoms on behalf of which a whooooole lot of people recently did a good, effective bit of walking.

Planned Parenthood.

I recently did the Sister Walk in Cardiff. I'm a member of the UK Women's Equality Party. Could well be time to put my feet where my convictions are. I would walk 500 miles for Planned Parenthood, if you'd donate to them. I would do it in 60 days, because there has to be a structure to these challenges. I'd set up a separate 500 Mile Walk blog to chart progress, separate from The Disappearing Man, which has a history of getting rather sweary and scatalogical. Progress would be marked on my Samsung smartphone's S Health step-counter (unless some delightful techie-firm wanted to donate a properly hardcore pedomenter), and progress would be logged daily, so supporters could see how far I'd walked by that point.

What do you think? Would you support a walk like that, Disappearers?

Now, I should say, this is all top-of-the-head thinking at the moment. I haven't even found out whether Planned Parenthood accepts donations from sponsored events like this. But if they did, would you sponsor me to get my Proclaimers on and walk 500 miles to support them?

I've never done this in a Disappearing Man blog entry before, but if you'd be willing to sponsor such a madness, drop me a line, either through Facebook, Twitter (@FylerWrites) or via Fylerwrites@gmail.com (annnnd for all I know, cue the anti-PP hate mail...)

The 'official' walk won't begin till I've set up blogs and got sponsors and so on. For now, they're all just 'practice walks.' Speaking of which, I have to dash - Walk #1 for today is way overdue. But before I go, if you want to cut to the chase and simply support vital healthcare that's under threat from political dogmatism, they do take donations direct - go here and help them out right now.